The greatest need expressed by patients that we have identified, is for honest, understandable and disease-specific information about what the future might hold.
Therefore, one of the main aims of the CRE-PF is to develop and maintain educational and support resources for patients and community partners. The Lung Foundation Australia is a critical partner for CRE-PF. Its established and highly successful infrastructure has assisted us with the development of resources that promote the important role of the patient in managing pulmonary fibrosis.
Some of the resources that have been developed so far include the following:
This fact sheet has been developed in collaboration with the Lung Foundation Australia and aims to provide initial information for people who have just been diagnosed with IPF.
These education and support resources are available by clicking the links in their headings above or via our Tools and Resources webpage which contains links to these and additional resources. Further resources are also available on the Lung Foundation Australia website.
There will be more resources to follow, but in the meantime please refer to the Lung Foundation Australia website for further information and support options.
To meet the expressed support needs of people with PF and to overcome these challenges, Lung Foundation Australia has developed the PF Peer Connect service. This service, unique in the world, aims to facilitate peer support for people with PF wherever they are located in Australia.
This evaluation aimed to:
This evaluation has been completed and the results are available on our Tools and Resources page.