The greatest need expressed by patients we have identified, is for honest, understandable and disease-specific information about what the future might hold.
Therefore, one of the main aims of the CRE-PF is to develop and maintain educational and support resources for patients and community partners. The Lung Foundation Australia is a critical CRE partner with established and highly successful infrastructure to assist with the development of these resources that will promote the important role of the patient in managing pulmonary fibrosis.
This fact sheet has been developed in collaboration with the Lung Foundation Australia and aims to provide initial information for people who have just been diagnosed with IPF.
The IPF fact sheet is available on the LFA website and can be downloaded here.
There will be more resources to follow, but in the meantime please refer to the Lung Foundation Australia website for further information and support options.
To meet the expressed support needs of people with PF and to overcome these challenges, Lung Foundation Australia has developed the PF Peer Connect service. This service, unique in the world, aims to facilitate peer support for people with PF wherever they are located in Australia.
This evaluation aims to:
Recruitment for this evaluation is currently underway.