Contact Us

Phone
Alison Hey-Cunningham +61 2 9515 6651    

Email
alison.hey-cunningham@sydney.edu.au

Address
Centre of Research Excellence in Pulmonary Fibrosis
Respiratory Medicine and Sleep Unit
Level 11, Royal Prince Alfred Hospital
Camperdown NSW 2050

Facebook

Twitter

Online Enquiry

* Required fields

Information and Support for People with IPF and their Carers

COVID-19 Information Resources

Resources developed by Lung Foundation Australia

What is Corona virus and COVID-19? A downloadable information resource developed for people living with lung disease by the Lung Foundation Australia is available here.

COVID-19 Door Poster - Developed to identify residents who are living with a lung condition and request that those intending on entering take extra precautions.  This poster can be downloaded here

Webinar: Understanding COVID-19: Looking after your mental health during the Coronavirus

This webinar features Clinical Psychologist Debra Sandford, who discusses the importance of emotional well-being during COVID-19.  Hear practical ideas for looking after your mental health and managing challenges whilst navigating through this time of change and physical distance.

To view this webinar, please go to the Lung Foundation Australia website

Other Resources

A collection of other information resources, developed by the Department of Health for both the general public and health professionals, are available here.

Information Sheets

  • Life with Pulmonary Fibrosis

This booklet contains information for people who have been diagnosed with Pulmonary Fibrosis and their Carers.

The information booklet can be downloaded here Life with Pulmonary Fibrosis.

 

  • Idiopathic Pulmonary Fibrosis Fact Sheet

Fact Sheet designed for newly diagnosed IPF patients.

The fact sheet can be downloaded here Idiopathic Pulmonary Fibrosis Fact Sheet.

 

Support Service

  • Pulmonary Fibrosis Peer Connect Service

The PF Peer Connect service, which is run by Lung Foundation Australia, matches people living with Pulmonary Fibrosis and their carers with someone going through a similar experience.

For more information, please download the Peer Connect Flyer here Pulmonary Fibrosis Peer Connect.

 

Pulmonary Fibrosis Webinars

  • Topic: The emotional Impact of IPF

Presenter: Debra Sandford Clinical Psychologist from the University of Adelaide and Royal Adelaide Hospital.

Debra shares information regarding the emotional impact of IPF and the importance of taking care of your emotional wellbeing.

Access the recording of this webinar here.

 

  • Topic: Self-management and Pulmonary Fibrosis

Presenter: Dr John Mackintosh Respiratory and Lung Transplant Physician at Prince Charles Hospital.

This webinar features information on self-management, including guidance on lifestyle and symptom management. John, an IPF patient advocate, also shares his experience of managing day-to-day with IPF.

Access the recording of this webinar here.

 

  • Topic: Oxygen Therapy and Pulmonary Fibrosis

Presenter: Susanne Webster Clinical Nurse Consultant, Royal Prince Alfred Hospital.

This webinar features information on oxygen therapy, including starting on oxygen, tips for incorporating oxygen into your life and travelling with oxygen. 

Access the recording of this webinar here.

 

  • Topic: Exercise and Pulmonary Fibrosis

Presenter: James Walsh Clinical Consultant Physiotherapist from the Queensland Lung Transplant Service & Advanced Heart Failure and Cardiac Transplant Unit at the Prince Charles Hospital.

James shared his knowledge to help develop a better understanding of exercising with this condition and the benefits of exercise for people living with Pulmonary Fibrosis.

Access the recording of this webinar here.

 

  • Topic: Life with Current IPF Medications: the Benefits and Side Effects 

Presenters: Dr Gregory Keir and Bill Van Nierop

Access the recording of the webinar here.

 

More patient and carer resources are currently being developed, however, for further information and support, please refer to the Lung Foundation Australia website.