Phone
Alison Hey-Cunningham +61 2 9515 6651
Email
alison.hey-cunningham@sydney.edu.au
Address
Centre of Research Excellence in Pulmonary Fibrosis
Respiratory Medicine and Sleep Unit
Level 11, Royal Prince Alfred Hospital
Camperdown NSW 2050
COVID-19: Advice for people living with Pulmonary Fibrosis
This fact sheet was developed through collaboration between the CRE-PF TEDS group and Lung Foundation Australia and includes useful information regarding COVID-19 and how it spreads, how you can reduce the risk of infection, maintaining the management of your health as well as providing links to other useful resources. The fact sheet can be downloaded here.
Resources developed by Lung Foundation Australia
What is Corona virus and COVID-19? A downloadable information resource developed for people living with lung disease by the Lung Foundation Australia is available here.
COVID-19 Door Poster - Developed to identify residents who are living with a lung condition and request that those intending on entering take extra precautions. This poster can be downloaded here
Understanding COVID-19: Staying fit and strong at home during the pandemic
Maintaining physical health and fitness during isolation may be challenging, especially for those living with lung disease. Senior Respiratory Physiotherapist, Janet Bondarenko provides practical advice for maintaining movement at home. Access to the outside world may be restricted, but the possibilities for home fitness are endless.
To view this webinar, please go to the Lung Foundation Australia website
Understanding COVID-19: Support for the Carer
Clinical psychologist Debra Sandford discusses the impact of COVID-19 on patients and carers and offers tips & advice on managing emotional wellbeing and mental challenges during this time.
To view this webinar, please go to the Lung Foundation Australia website
Staying safe during the pandemic: COVID-19 information for ILD patients.
This webinar features Professor Dan Chambers MBBS MRCP FRACP MD and highlights the way COVID-19 may affect those with an existing lung disease. This session myth busts the misinformation, offers practical advice for keeping yourself and others safe, and answers your FAQs.
To view this webinar, please go to the Lung Foundation Australia website
Understanding COVID-19: Looking after your mental health during the Coronavirus
This webinar features Clinical Psychologist Debra Sandford, who discusses the importance of emotional well-being during COVID-19. Hear practical ideas for looking after your mental health and managing challenges whilst navigating through this time of change and physical distance.
To view this webinar, please go to the Lung Foundation Australia website
Managing cough and breathlessness in PF
In this comprehensive session from the recent Lung Foundation Australia Live Well, Breathe Better Pulmonary Fibrosis (PF) Webinar Series , Amanda McAnulty, Senior Physiotherapist in pulmonary, cardiac and chronic disease rehabilitation, shared tips and advice for managing cough and breathlessness in PF.
Click here to view the recording.
This booklet contains information for people who have been diagnosed with Pulmonary Fibrosis and their Carers.
The information booklet can be downloaded here Life with Pulmonary Fibrosis.
This fact sheet provides information on common comorbidities that people with IPF may experience.
The fact sheet can be downloaded here Other Health Conditions Fact Sheet.
This fact sheet provides information on the progression of IPF and how to identify and manage common symptoms.
The fact sheet can be downloaded here Managing Progression in IPF Fact Sheet.
This fact sheet informs patients of the benefits of participating in a clinical trial and helps provide an understanding of the processes involved.
The fact sheet can be downloaded here Clinical Trials Fact Sheet.
This fact sheet outlines the role of anti-fibrotic medication in IPF treatment and provides information on the use of these medications along with the common side affects that may be experienced.
The fact sheet can be downloaded here Antifibrotic treatments for IPF Fact Sheet.
This fact Sheet is designed for newly diagnosed IPF patients.
The fact sheet can be downloaded here Idiopathic Pulmonary Fibrosis Fact Sheet.
The PF Peer Connect service, which is run by Lung Foundation Australia, matches people living with Pulmonary Fibrosis and their carers with someone going through a similar experience.
For more information, please download the Peer Connect Flyer here Pulmonary Fibrosis Peer Connect.
Presenter: Debra Sandford Clinical Psychologist from the University of Adelaide and Royal Adelaide Hospital.
Debra shares information regarding the emotional impact of IPF and the importance of taking care of your emotional wellbeing.
Access the recording of this webinar here.
Presenter: Dr John Mackintosh Respiratory and Lung Transplant Physician at Prince Charles Hospital.
This webinar features information on self-management, including guidance on lifestyle and symptom management. John, an IPF patient advocate, also shares his experience of managing day-to-day with IPF.
Access the recording of this webinar here.
Presenter: Susanne Webster Clinical Nurse Consultant, Royal Prince Alfred Hospital.
This webinar features information on oxygen therapy, including starting on oxygen, tips for incorporating oxygen into your life and travelling with oxygen.
Access the recording of this webinar here.
Presenter: James Walsh Clinical Consultant Physiotherapist from the Queensland Lung Transplant Service & Advanced Heart Failure and Cardiac Transplant Unit at the Prince Charles Hospital.
James shared his knowledge to help develop a better understanding of exercising with this condition and the benefits of exercise for people living with Pulmonary Fibrosis.
Access the recording of this webinar here.
Presenters: Dr Gregory Keir and Bill Van Nierop
Access the recording of the webinar here.
More patient and carer resources are currently being developed, however, for further information and support, please refer to the Lung Foundation Australia website.