The CRE-PF is in a unique position to ensure the transfer of existing knowledge into clinical practice, to improve the lives of people with PF.
Critical elements of this care, and the key issues the CRE-PF focuses on are:
1) the use of standard operating procedures for diagnosis
2) suggestions for PF management, which form the basis of clinical decision support tools to promote evidence-based care.
The CRE-PF has available to it the platforms necessary for translation, including the PF Consortium and patient organisations TSANZ and LFA, whose involvement is crucial.
The CRE-PF has developed and disseminated patient-centred educational resources for people with pulmonary fibrosis, as well as educating and supporting health professionals in their delivery. We are partnered with the peak bodies in lung health in Australia, providers of patient education and support informed by identified patient needs, and have developed a comprehensive platform to provide support and education for patients and carers.
To this end, we have: