Contact Us

Phone
Alison Hey-Cunningham +61 2 9515 6651    

Email
alison.hey-cunningham@sydney.edu.au

Address
Centre of Research Excellence in Pulmonary Fibrosis
Respiratory Medicine and Sleep Unit
Level 11, Royal Prince Alfred Hospital
Camperdown NSW 2050

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Translation, EDucation & Support (TEDS)

The translation and education program of work of the CRE-PF is overseen by the Translation, EDucation and Support (TEDS) sub-committee. The sub-committee members are:

  • Prof Anne Holland (Chair)
  • A/Prof Tamera Corte (Treasurer)
  • A/Prof Ian Glaspole
  • Dr Nicole Goh
  • Dr Alison Hey-Cunningham
  • Dr Yet Khor
  • Ms Joanna Lee
  • Ms Jamie Maloney (Coordinator)
  • Mr Harry Patsamanis
  • Mr John Price
  • Ms Debra Sandford
  • Mr Robert Sheehy
  • Ms Lissa Spencer
  • Ms Sherille Sullivan
  • Dr Alan Teoh
  • Dr Gabriella Tikellis

The TEDS committee extends their thanks to former members Ms Susanne Webster, Mr Michael Bartlett, Dr Greg Keir, Ms Kelcie Herrmann, Ms Brigitta Rose, Ms Jennifer Walsh and Ms Chantale Dorrington.

 


Translation of new knowledge into practice

The CRE-PF is in a unique position to ensure the transfer of existing knowledge into clinical practice, to improve the lives of people with PF. Crucial to this are our close partnerships with the Thoracic Society of Australia and New Zealand (TSANZ) and Lung Foundation Australia (LFA).

Critical elements of patient care in PF, and the key issues the CRE-PF focuses on are:

1) The use of standard operating procedures for diagnosis; and

2) Suggestions for PF management, which form the basis of clinical decision support tools to promote evidence-based care.

 


Education and Support resources for those living with Pulmonary Fibrosis

The CRE-PF has developed and disseminated patient-centred educational resources for people with pulmonary fibrosis, as well as educating and supporting health professionals in their delivery. We are partnered with the peak patient body in lung health, Lung Foundation Australia (LFA), to provide patient education and support informed by identified patient needs.

To this end, we have:

  • Sought patient input on their needs through focus groups, online and face-to-face forums.
  • Created a web-based patient portal that provides educational resources, links patients with each other and other means of support, and houses information on clinical trials and pulmonary rehabilitation.
  • Created PF-specific resources for LFA’s Information and Support Centre to provide initial information to people who call the LFA help line, including resources and links to community support.
  • Created patient support groups specifically for people with PF.