Contact Us

Phone
Alison Hey-Cunningham +61 2 9515 6651    

Email
alison.hey-cunningham@sydney.edu.au

Address
Centre of Research Excellence in Pulmonary Fibrosis
Respiratory Medicine and Sleep Unit
Level 11, Royal Prince Alfred Hospital
Camperdown NSW 2050

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Translation & EDucation Support (TEDS)

 

Translation of new knowledge practice

The CRE-PF is in a unique position to ensure the transfer of existing knowledge into clinical practice, to improve the lives of people with PF.

Critical elements of this care, and the key issues the CRE-PF focuses on are:

1) the use of standard operating procedures for diagnosis

2) suggestions for PF management, which form the basis of clinical decision support tools to promote evidence-based care.

The CRE-PF has available to it  the platforms necessary for translation, including the PF Consortium and patient organisations TSANZ and LFA, whose involvement is crucial.

 


Education and Support resources for those living with Pulmonary Fibrosis

The CRE-PF has developed and disseminated patient-centred educational resources for people with pulmonary fibrosis, as well as educating and supporting health professionals in their delivery. We are partnered with the peak bodies in lung health in Australia, providers of patient education and support informed by identified patient needs, and have developed a comprehensive platform to provide support and education for patients and carers.

To this end, we have:

  • Sought patient input on their needs through focus groups, online and face-to-face forums.
  • Created a web-based patient portal that will provide a forum for patient comment; link patients with one another; provide educational resources; provide information on clinical trials.
  • Created PF-specific resources for LFA’s Information and Support Centre to provide initial information to people who call the LFA help line, including resources and links to community support.
  • Developed an educational curriculum for people with Pulmonary Fibrosis undertaking pulmonary rehabilitation, supported by web-based resources and slide kits.
  • Created patient support groups specifically for people with Pulmonary Fibrosis.